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Please Help Us Educate Members of Congress About Lifetime Insurance Caps!

National Organization for Rare Disorders 

While NORD has been excited to see the elimination of lifetime caps included in each health reform proposal currently being considered by Congress, the old adage "the devil is in the details" still rings true. Although all of the bills eliminate lifetime caps, in some proposals the provision will be delayed and in others there is no requirement for existing plans. We need you to write your members of Congress to ask for lifetime caps to be prohibited immediately.

The way the bills are currently drafted would result in many people potentially facing lifetime caps, even after health reform is enacted.  Individuals with employer-sponsored insurance could face caps until 2018 or possibly indefinitely if their insurance coverage does not change.  This is unacceptable. NORD has been advocating for the immediate elimination of lifetime caps in both new and existing plans in all insurance markets. 

Congressional leaders are currently working to combine the various health reform bills into House and Senate versions before they can be voted on by each chamber.  Now is the time for everyone who wants lifetime caps to be eliminated to contact Congress. 

Please e-mail your members of Congress TODAY to ask that lifetime caps be eliminated immediately.  Sample letters have been provided (see below) that you can personalize with information about how your family or your members are affected by insurance problems, the annual cost of care and, especially, lifetime caps.  If you have hit a lifetime cap, please be sure to include that as well.

To find the e-mail addresses of your Senators and Representative go to:

U.S. House of Representatives:  http://www.house.gov/

U.S. Senate:  http://www.senate.gov/

Sample Senate Letter 
 
Sample House of Representatives Letter

Thank you for your continued support.  In this climate of change, it's VERY important for all of us in the rare disease community to make our voices heard on issues related to health reform.

 

Added October 14, 2009

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