| Youth | |||
 |
 |
||
| Elise was a gymnast, dancer, and sports aerobics competitor when she was diagnosed with CRPS in November 2005, following ankle surgery. She had a goal and was determined to reach it. She has currently reached the Australian Finals. | Jessika lives in Trinidad & Tobago, West Indies. This photo
shows her kneeboarding for the first time after treatment
for CRPS.
Jessika believes in herself and her motto is "Live life… uninterrupted!" |
||
 |
 |
||
| Yvonne Larity's goal was to be on the Olympic track team. She was diagnosed with CRPS in October 2005 and has had to alter her goals. She now rides competitively. | University of Illinois' Kayani Turner (11) played volleyball through the pain of her CRPS. Credit: Adam Babcock |
||
|
|||
| Walk for RSD April 2010, Blue Bell, Pennsylvania Ellen Chinn's Mitzvah project was to raise awareness of CRPS and funds for both the RSDSA Research Fund and the Children's Hospital of Philadelphia (CHOP). Click here to read Ellen's story (PDF). |
|||
Breakthrough Clinic Helps Kids Cope With Pain The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.
Cleveland Clinic: Pain clinic last resort for children CLEVELAND -- Most of us have experienced physical pain but imagine it being so intense you can hardly move or be touched. That's life for some teenagers at the Cleveland Clinic Pediatric Pain Rehabilitation Program. The viewing of this video is not intended to provide advice on personal medical matters or to substitute for consultation with a physician.
Special Night for Baseball Fan Battling Painful Disease
Stories of Hope Ayuda que simboliza esperanza para Estefany The Story of My Left Foot Painful illness can’t keep teen from hoops (video) Training and Conditioning: Rising Above Pain Bethlehem Area News: Freedom High School student fighting, winning battle with debilitating illness La Crosse Tribune: Two girls lean on each other for support against a rare disease Elise's Story Alissa's Story (Video) Anna Brilliant's
Story Changing the Course of My Dreams Finding Other Ways to Give: Nicole Biller's Awareness Story Orange Ribbons Pinned
in Our Dreams Jessika's story: "Live
life …uninterrupted!" Kim Bosse's Essay from McGee March Madness 2008 Stephanie Lewis's Essay from McGee March Madness 2008 Surviving College with CRPS Parents Does Your Child’s School Have a "Faker’s Club"? RSDParents Yahoo! Online Support Group Random
Eruptions What We Can Learn From Aya Ravek Your Child Is Diagnosed With CRPS Publications and Resources Final Progress Report: RSDSA and RSDhope Grant Hope for Children with CRPS:
The Mayo Family Pediatric Pain
Rehabilitation Center (PPRC) Author: Logan DE, Chiang G, Condon M, et al The Very Real Pain of RND Author: Lebel A, Becerra L, Wallin D, et al Amplified Abdominal Pain in Children Management of Pediatric
Patients with Complex Regional Pain Syndrome Pediatric CRPS Tri-Fold Brochure Pediatric CRPS Slide Kit (PDF) Helping
Children/Youth With CRPS Succeed in School Take Flight With Hope: Stories of Hope and Transformation Websites The Advocacy Center provides consumer-driven services to support people with disabilities and their families in achieving their goals. Through information-sharing, individual advocacy support, independent service coordination and eductional workshops, we advance people's knowledge of resources and help them to build life-long advocacy skills. Our leadership development programs prepare individuals to help others as volunteer lay advocates, to influence policy, and to promote understanding and acceptance of people with disabilities. fightingagainstrsd is a website by teenagers who have CRPS. Kids in Pain (UK) provides support and friendship to young people suffering from a chronic pain condition and their families. Pain in infants, children, and adolescents: Resources for parents and professionalsRock for RSDRSD in MotionRSD Hope Teens is an online support group for kids and teenagers suffering from CRPS. RSD/CRPS Awareness in Teens Facebook Group
|
|||
